About Us is an observational, prospective, long-term national registry of rheumatic patients, conceived and promoted by the Portuguese Society of Rheumatology (SPR).

Quem Somos —

The registry works as an electronic clinical file available on an online web platform, designed to be used in real time while observing the patients, and it is subjected to the signature of an informed consent by the patient. Since 2008, has been used on a regular basis by rheumatologists and other health professionals, in order to collect and register clinical data of rheumatic patients. has also an area exclusively reserved for patients, named Patient Area, in which patients can fill in various disease-specific self-assessment questionnaires, with the answers being automatically loaded on the consultation page. This exclusive Patient Area is currently undergoing renovation to better meet the needs of rheumatic patients. has national coverage and became a fundamental resource for the development of clinical research in Rheumatology, but it is also crucial for the continuous improvement of care provided to rheumatic patients.

The registry is constantly being updated with the generation of new registration screens/layouts for diseases or other health-related issues. Two of the most recent being the registration of rheumatic patients infected with SARS-CoV-2, as well as the registration of patients’ vaccination against COVID-19.

The activity of is regularly disclosed in monthly newsletters and on an annual report, with a detailed description of all the data registered.

The registry has protocols available for the prospective registration of 13 different rheumatic diseases.

In addition, has two generic protocols to record data on other rheumatic diseases, both occurring in children and adults.

Since 2014, has made available English protocols for all the rheumatic diseases described above.

  • Rheumatoid arthritis (RA)

  • Early arthritis (EA)

  • Spondyloarthritis (SpA)

  • Vasculitis

  • Psoriatic arthritis (PsA)

  • Osteoarthrosis (OA)

  • Juvenile Idiopathic Arthritis (JIA)

  • Scleroderma

  • Systemic Lupus Erythematosus (SLE)

  • Sjögren’s syndrome

  • Auto-inflammatory syndromes (AIS)

  • Myositis

  • Osteoporosis/osteoporotic fractures

Other Features of

  • Sharing of clinical data between the different centers.

  • Generation of automated center-specific statistical reports.

  • Generation of a list of irregularities.

  • Data search by demographic and clinical characteristics of the patients.

  • Emission of standardized letters for general practitioner doctors and for the pulmonology diagnosis centers.

  • Creation and visualization of checklists.

  • Reminders.

  • Alarms.



  1. Be a driving force to promote the improvement of health care provided to rheumatic patients.

  2. Promote an increase in knowledge and research performed in the Rheumatology area.

  3. Become the National Registry of all rheumatic patients, including all rheumatic diseases.

  4. Be the official electronic clinical file used by all rheumatologists, thus avoiding duplication of data recording actions by clinicians.

  5. Provide simple and fast access to clinical data by clinicians and their centers, that allow them to quickly answer administrative questions and support their clinical decisions.

  6. Provide patients with useful information about their disease and treatment.


  • Coordinating and Scientific Committee (CSC)

    The CSC for 2020-2022 consists of six elements appointed by the SPR Board and by Ana Maria Rodrigues, as the National Coordinator.

  • National Commission (NC)

    The NC of for 2020-2022 includes representatives from each clinical center belonging to, that make the liaison between the CSC of and the respective center.

  • Experts group

    The Experts Group for 2020-2022 is composed of rapporteurs of the working groups and are responsible for evaluating scientific projects and propose national and international initiatives.

Coordinating and Scientific Committee (CSC)

The Coordinating and Scientific Committee is responsible for defining the Strategic Plan for and for evaluating projects submitted to, protocols with the pharmaceutical industry, national and foreign collaborations and requests for the provision of services.

The CSC of for the 2020-2022 period is composed by the following people:

  • Helena Santos – Clinical Diretor of Instituto Português de Reumatologia

  • Jaime Branco – Director of the Rheumatology Service of Centro Hospitalar de Lisboa Ocidental (CHLO), E.P.E. - Hospital de Egas Moniz

  • João Eurico Fonseca – Director of the Rheumatology Service of Centro Hospitalar Universitário Lisboa Norte (CHULN), E.P.E. - Hospital de Santa Maria

  • José António Pereira da Silva – Director of the Rheumatology Service of Centro Hospitalar e Universitário de Coimbra (CHUC)

  • Lúcia Costa – Director of the Rheumatology Service of Centro Hospitalar Universitário de São João (CHUSJ)

  • Maria José Santos – Director of the Rheumatology Service of Hospital Garcia de Orta (HGO), E.P.E.

  • Ana Maria Rodrigues – National Coordinator

National Commission (NC)

The NC of is responsible for monitoring the implementation and use of at a local level, for proposing new developments and applications of and for deliberating and deciding on the acceptance, request for revision or rejection of research projects involving the use of data from, taking into account the opinion of the CSC.

Centre Representative
Unidade Local de Saúde do Alto Minho (USALM), E.P.E. - Ponte de Lima José Costa
Centro Hospitalar de Lisboa Ocidental (CHLO), E.P.E. - Hospital de Egas Moniz Walter Castelão, Manuela Costa
Centro Hospitalar Universitário de São João (CHUSJ) José Miguel Bernardes
Serviço de Saúde da RAM, EPERAM - Hospital Dr. Nélio Mendonça Lídia Teixeira
Centro Hospitalar Universitário Lisboa Norte (CHULN), E.P.E. - Hospital de Santa Maria João Eurico Fonseca
Centro Hospitalar e Universitário de Coimbra (CHUC) Cátia Duarte
Instituto Português de Reumatologia (IPR) Luís Miranda
Hospital do Divino Espírito Santo de Ponta Delgada, E.P.E. Teresa Nóvoa
Hospital Garcia de Orta (HGO), E.P.E. Ana Catarina Duarte
Centro Hospitalar Universitário do Algarve, E.P.E. - Unidade de Faro Graça Sequeira
Centro Hospitalar do Baixo Vouga, E.P.E. - Hospital Infante D. Pedro - Aveiro Susana Silva
Centro Hospitalar Entre o Douro e Vouga (CHEDV), E.P.E. Paula Valente
Centro Hospitalar de Vila Nova de Gaia / Espinho (CHVNGE), E.P.E. Patrícia Pinto
Centro Hospitalar Universitário Cova da Beira (CHUCB), E.P.E. - Covilhã/Fundão Margarida Oliveira
Centro Hospitalar de Leiria, E.P.E. Marília Rodrigues
Hospital CUF Descobertas Patrícia Nero
Centro Hospitalar Tondela - Viseu (CHTV), E.P.E. Maura Couto
Clínica CUF Alvaldade Luís Miranda
Hospital CUF Tejo Helena Canhão
Hospital Sousa Martins – Unidade Local de Saúde da Guarda Cláudia Vaz
Hospital Pediátrico do CHUC - Serviço de Pediatria Ambulatória - Consulta de Reumatologia Manuel Salgado
Hospital Lusíadas Lisboa António Vilar
Hospital da Luz Lisboa Filipa Ramos
Centro Hospitalar do Médio-Ave (CHMA), E.P.E. - Unidade de Vila Nova de Famalicão Sónia Carvalho
Hospital Beatriz Ângelo Tiago Costa
Centro Hospitalar de Trás-os-Montes e Alto Douro (CHTMAD), E.P.E. - Hospital de S. Pedro (Vila Real) Lígia Silva
Hospital da Luz Torres de Lisboa Joaquim Polido Pereira
Centro Hospitalar de Lisboa Central (CHLC), E.P.E. - Hospital de D. Estefânia Margarida Paula Ramos
Centro Hospitalar de Médio Tejo (CHMT), E.P.E. - Unidade Tomar Jorge Garcia
Hospital de Santo Espírito da Ilha Terceira, E.P.E.R. Ana Rodrigues
Hospital Professor Doutor Fernando Fonseca, E.P.E. - Pediatria Marta Cabral
Hospital de Vila Franca de Xira, E.P.E. Helena Sousa
Centro Hospitalar Universitário de Lisboa Central (CHULC), E.P.E. - Hospital Curry Cabral Helena Canhão
Centro Hospitalar Universitário do Algarve, E.P.E. - Unidade de Portimão Graça Sequeira
Hospital CUF Torres Vedras Filipe Barcelos
Hospital de Braga, E.P.E. Marcos Cerqueira
Centro Hospitalar do Tâmega e Sousa (CHTS), E.P.E. Tiago Venâncio Meirinhos
Unidade Local de Saúde do Litoral Alentejano (ULSLA) Ana Valido
Hospital Distrital de Santarém, E.P.E. Filipa Farinha
Centro Hospitalar de Setúbal, E.P.E. Teresa Pedrosa
Clínica Reumatológica Dr. Melo Gomes Melo Gomes
Clínica de Reumatologia de Lisboa Augusto Faustino
Clínica Reumatológica Coimbra José A. P. Silva
Rorvilar António Vilar
Clínica Médico-Cirúrgica de Santa Tecla, Lda. José Costa
Casa de Saúde da Boavista - Clínica de Reumatologia Carlos Vaz
Centro Hospitalar de S. Francisco (CHSF) Margarida Cruz
Consultórios Médicos das Caldas da Rainha, Lda. Margarida Cruz
Clínica Médica Feirense Paula Valente
Hospital da Arrábida Paula Valente
Clínica Médica de Felgueiras José Silva Brito
Centro Médico de Ferreira do Alentejo Pedro Gonçalves
CDI – Grupo EUROMEDIC Pedro Gonçalves
Canas da Silva Saúde, Lda. Pedro Gonçalves
Clínica da Mãe e da Criança Adriano Neto
Santa Casa da Misericórdia de Montemor-o-Velho Jorge Garcia
Medicourém - Serviços Médicos e Paramédicos, Lda. Jorge Garcia
Clínica SAMS Tomar Jorge Garcia
Ucardio Jorge Garcia
Clínica do Campo Grande João Ramos
Centro de Enfermagem da Portela, Lda. João Ramos
Centro Clínico de Lisboa - SAMS Carlos Miranda Rosa
Hospital Particular do Algarve | Gambelas - Faro Cristina Catita
Hospital da Luz Oeiras Catarina Resende
Hospital CUF Santarém Maria João Saavedra
Hospital da Luz Clínica da Amadora Maria João Saavedra
Hospital da Luz Setúbal Catarina Resende
Hospital Ortopédico de Sant`Ana Filipe Araújo
Hospital das Forças Armadas Manuela Costa Parente
Clínica da Ribeira Paulo Monteiro
Montepio Rainha D. Leonor Luis Gaião
Hospital de Loulé Graça Sequeira
S.O.S. Médicos - Taviclínica Graça Sequeira
Clínica O Meu Médico Graça Sequeira
Hospital Particular do Algarve - Alvor Graça Sequeira
Clínica Dr Sizenando J C Ribeiro da Cunha, Lda. Inês Cunha
Clínica Coração de Jesus Bravo Pimentão
Instituto Médico de Évora Bravo Pimentão
Clínica d’Avenida Bravo Pimentão
Clínica Médica Arrifana de Sousa Iva Brito
CDT - Centro de Diagnóstico e Tratamento de Tomar Bravo Piemntão
Centro Clínico Amadora – Pediatria Marta Cabral
Joaquim Chaves Saúde - Clínica de Cascais Sara Cortes
Hospital CUF Cascais Filipe Araújo
Serviços Sociais da Caixa Geral de Depósitos (SSCGD) - Centro Clínico de Lisboa Manuela Micaelo
Clínica CUF Almada Ana Cristina Cordeiro

Experts group

The Expert Group for the 2020-2022 period is composed by the following people:

  • Anabela Barcelos – Osteoporosis Study Group

  • Augusto Faustino – Osteoarthritis Study Group

  • Daniela Faria – Pain Study Group

  • Fernando Pimentel Santos – Spondyloarthritis Study Group

  • José António Costa – Rheumatoid Arthritis Study Group

  • Lídia Teixeira – Rheumatology and General Practicionaire Study Group

  • Raquel Marques – Pediatric Rheumatology Study Group

  • Sandra Falcão – Muskulosqueletal Imaging Study Group

  • Tânia Santiago – Systemic Inflammatory Rheumatic Diseases Study Group