Reuma.pt is the National Registry of Rheumatic Patients.
The Reuma.pt (Healthcare Professionals Area) registry works as an electronical clinical file, designed to be used in real time while observing the patients.
Reuma.pt has also an area exclusively reserved for patients, named Patient Area, in which patients can fill in various disease-specific self-assessment questionnaires (i.e.: Patient reported outcomes – PROs). These PROs will be used during the medical consultation and will help monitoring the illness status of rheumatic patients.

All data registered and stored on Reuma.pt is subjected to the signature of an informed consent by the patient. Data can be exported and then analyzed using specific statistical programs, upon submission and approval of a scientific project by the Coordinating and Scientific Committee (CSC). All data are anonymized and analyzed as an aggregate. Safety information is regularly shared with the regulator.

Reuma.pt has several collaborations with national and international institutions – Collaborations –, ranging from the participation in other registries networks and research projects, to the cooperation with the Portuguese national health entity for the provision of services.

If you would like to collaborate with Reuma.pt please send us your proposal. Please contac us.

The Reuma.pt team is available to participate in events, whether for dissemination or training.

If you would like Reuma.pt to participate in an event, please contact us, indicating (if possible) the name of the event, the type of participation (dissemination and/or training) and its format (event’s date, duration, with/without audiovisual support, etc.).

For any queries, please contact our team using the following:

• By email: reuma.pt@spreumatologia.pt
• By post: Av. Berlim, 33B, 1800-033 Lisboa
• By telephone (working daysfrom 9:00 am to 6:00 pm): +351 213534395

In case you need to consult a rheumatologist, please find on the Portuguese Society of Rheumatology (SPR) webpage – https://spreumatologia.pt/encontre-um-reumatologista/ – a list of available rheumatologists working in Portugal.

Talk to your rheumatologist about your interest in using Reuma.pt and both will find a solution together.

To access the area exclusively reserved for patients, named Patient Area, and fill in the various disease-specific self-assessment questionnaires associated with your rheumatology consultation, you will need to provide your National Health Service (SNS) number and date of birth. If you have already registered a password, you will also be access to your medical data from your consultations, previously registered on Reuma.pt.

Completing the self-assessment questionnaires available in the Patient Area is important because your attending physician:

1. Has immediate access to the answers and assessment of the patient’s global status;
2. Obtains a global perspective of the effectiveness and safety of the patient’s therapy.

With this information, patients help their rheumatologists to understand the impact of their disease in various areas of their life (namely, their physical and mental health, work and lifestyle). Altogether, doctor and patient will find the most suitable treatment plan.

Reuma.pt works as an electronic clinical file, providing the physician, in real time, with all information about the patient’s assessment and evolution.
Additionally, data stored on Reuma.pt can be exported, always anonymously and in accordance with the general data protection regulation (Regulamento Geral de Proteção de Dados – RGPD), and then analyzed using specific statistical programs, following submission and approval of a scientific project by the Reuma.pt Coordinating and Scientific Committee.

Safety information, including adverse drug reactions (ADRs) are regularly shared with the regulatory body, the Infarmed Pharmacovigilance Unit.

All Reuma.pt collaborators who have provided with data entry can submit a research project to Reuma.pt.

The Coordinating and Scientific Committee of Reuma.pt may also consider applications from independent researchers or non-profit entities in the health area, as long as their excellence, relevance and scientific interest justifies it.

The submission of a research project to Reuma.pt is done through the platform available on our website — Project submission

Research projects submitted to Reuma.pt must comprise the following sections:

• Abstract
• Rationale
• Aims
• Study population
• Variables and time points to be collected
• Analysis plan
• Expected resultads and limitation
• Timeline
• Ethics
• Funding and conflicts of interests
• References

The submission form must also identify the applicant, the work team, and the institutions where the research will be carried out.

In addition to filling out all the fields on the project submission form, two other documents are required, without which projects cannot be carried out:

• Copy of the approval by the competent Ethics Committee (EC);
• Signing of the data tranfer and use agreement (Document in portuguese only)