Registo Nacional de Doentes Reumáticos
Av. Berlim 33-B Lisboa Portugal 1800-031

About Us is an observational, prospective, long-term national registry of rheumatic patients, conceived and promoted by the Portuguese Society of Rheumatology (SPR).

Quem Somos —

The registry works as an electronic clinical file available on an online web platform, designed to be used in real time while observing the patients, and it is subjected to the signature of an informed consent by the patient. Since 2008, has been used on a regular basis by rheumatologists and other health professionals, in order to collect and register clinical data of rheumatic patients. has also an area exclusively reserved for patients, named Patient Area, in which patients can fill in various disease-specific self-assessment questionnaires, with the answers being automatically loaded on the consultation page. This exclusive Patient Area is currently undergoing renovation to better meet the needs of rheumatic patients. has national coverage and became a fundamental resource for the development of clinical research in Rheumatology, but it is also crucial for the continuous improvement of care provided to rheumatic patients.

The registry is constantly being updated with the generation of new registration screens/layouts for diseases or other health-related issues. Two of the most recent being the registration of rheumatic patients infected with SARS-CoV-2, as well as the registration of patients’ vaccination against COVID-19.

The activity of is regularly disclosed in monthly newsletters and on an annual report, with a detailed description of all the data registered.

The registry has protocols available for the prospective registration of 13 different rheumatic diseases.

In addition, has two generic protocols to record data on other rheumatic diseases, both occurring in children and adults.

Since 2014, has made available English protocols for all the rheumatic diseases described above..

  • Rheumatoid arthritis (RA)

  • Early arthritis (EA)

  • Spondyloarthritis (SpA)

  • Vasculitis

  • Psoriatic arthritis (PsA)

  • Osteoarthrosis (OA)

  • Juvenile Idiophatic Arthritis (JIA)

  • Scleroderma

  • Systemic Lupus Erithematosus (SLE)

  • Sjögren's syndrome

  • Auto-inflammatory syndromes (AIS)

  • Myositis

  • Osteoporosis/osteoporotic fractures

Other Features of

  • Sharing of clinical data between the different centers.

  • Generation of automated center-specific statistical reports.

  • Generation of a list of irregularities.

  • Data search by demographic and clinical characteristics of the patients.

  • Emission of standardized letters for general practitioner doctors and for the pulmonology diagnosis centers.

  • Creation and visualization of checklists.

  • Reminders.

  • Alarms.



  1. Be a driving force to promote the improvement of health care provided to rheumatic patients.

  2. Promote an increase in knowledge and research performed in the Rheumatology area.

  3. Become the National Registry of all rheumatic patients, including all rheumatic diseases.

  4. Be the official electronic clinical file used by all rheumatologists, thus avoiding duplication of data recording actions by clinicians.

  5. Provide simple and fast access to clinical data by clinicians and their centers, that allow them to quickly answer administrative questions and support their clinical decisions.

  6. Provide patients with useful information about their disease and treatment.


  • Coordinating and Scientific Committee (CSC)

    The CSC for 2022-2024 consists of six elements appointed by the SPR Board and by Ana Maria Rodrigues, as the National Coordinator.

  • National Commission (NC)

    The NC of for 2022-2024 includes representatives from each clinical center belonging to, that make the liaison between the CSC of and the respective center.

  • Experts group

    The Experts Group for 2022-2024 is composed of rapporteurs of the working groups and are responsible for evaluating scientific projects and propose national and international initiatives.

Coordinating and Scientific Committee (CSC)

The Coordinating and Scientific Committee is responsible for defining the Strategic Plan for and for evaluating projects submitted to, protocols with the pharmaceutical industry, national and foreign collaborations and requests for the provision of services.

The CSC of for the 2022-2024 period is composed by the following people:

  • Ana Maria Rodrigues – National Coordinator
  • Elsa Sousa – Coordinator of the Rheumatology Clinical Trial Unit of the Rheumatology Service of Centro Hospitalar Universitário Lisboa Norte (CHULN), E.P.E. – Hospital de Santa Maria
  • Fernando Pimentel Santos – Graduated Assistant Rheumatologist of the Rheumatology Service of Centro Hospitalar Lisboa Ocidentel (CHLO)
  • Helena Santos – Clinical Diretor of Instituto Português de Reumatologia
  • José António Pereira da Silva – Director of the Rheumatology Service of Centro Hospitalar e Universitário de Coimbra (CHUC)
  • Lúcia Costa – Director of the Rheumatology Service of Centro Hospitalar Universitário de São João (CHUSJ)
  • Maria José Santos – Director of the Rheumatology Service of Hospital Garcia de Orta (HGO), E.P.E.

National Commission (NC)

The NC of is responsible for monitoring the implementation and use of at a local level, for proposing new developments and applications of and for deliberating and deciding on the acceptance, request for revision or rejection of research projects involving the use of data from, taking into account the opinion of the CSC.

Centre Representative
Unidade Local de Saúde do Alto Minho (USALM), E.P.E. - Ponte de Lima José Costa
Centro Hospitalar de Lisboa Ocidental (CHLO), E.P.E. - Hospital de Egas Moniz Alexandre Sepriano
Centro Hospitalar Universitário de São João (CHUSJ) José Miguel Bernardes
Serviço de Saúde da RAM, EPERAM - Hospital Dr. Nélio Mendonça Lídia Teixeira
Centro Hospitalar Universitário Lisboa Norte (CHULN), E.P.E. - Hospital de Santa Maria Elsa Sousa
Centro Hospitalar e Universitário de Coimbra (CHUC) Mariana Luís
Instituto Português de Reumatologia (IPR) Luís Miranda
Hospital do Divino Espírito Santo de Ponta Delgada, E.P.E. Teresa Nóvoa
Hospital Garcia de Orta (HGO), E.P.E. Ana Catarina Duarte
Centro Hospitalar Universitário do Algarve, E.P.E. - Unidade de Faro Graça Sequeira
Centro Hospitalar do Baixo Vouga, E.P.E. - Hospital Infante D. Pedro - Aveiro Susana Silva
Centro Hospitalar Entre o Douro e Vouga (CHEDV), E.P.E. Paula Valente
Centro Hospitalar de Vila Nova de Gaia / Espinho (CHVNGE), E.P.E. Romana Vieira
Centro Hospitalar Universitário Cova da Beira (CHUCB), E.P.E. - Covilhã/Fundão Margarida Oliveira
Centro Hospitalar de Leiria, E.P.E. Marília Rodrigues
Unidade Local de Saúde do Nordeste Renata Aguiar
Hospital CUF Descobertas Patrícia Nero
Centro Hospitalar Tondela - Viseu (CHTV), E.P.E. Maura Couto
Clínica CUF Alvaldade Luís Miranda
Hospital CUF Tejo Helena Santos
Hospital Sousa Martins – Unidade Local de Saúde da Guarda Cláudia Vaz
Hospital Pediátrico do CHUC - Serviço de Pediatria Ambulatória - Consulta de Reumatologia Manuel Salgado
Hospital Lusíadas Lisboa Ana Rodrigues
Hospital da Luz Lisboa Filipa Ramos
Centro Hospitalar do Médio-Ave (CHMA), E.P.E. - Unidade de Vila Nova de Famalicão Sónia Carvalho
Hospital Beatriz Ângelo Tiago Costa
Centro Hospitalar de Trás-os-Montes e Alto Douro (CHTMAD), E.P.E. - Hospital de S. Pedro (Vila Real) Lígia Silva
Hospital da Luz Torres de Lisboa Joaquim Polido Pereira
Centro Hospitalar de Lisboa Central (CHLC), E.P.E. - Hospital de D. Estefânia Margarida Paula Ramos
Unidade Local de Saúde de Castelo Branco Pedro Abreu
Centro Hospitalar de Médio Tejo (CHMT), E.P.E. - Unidade Tomar Jorge Garcia
Hospital de Santo Espírito da Ilha Terceira, E.P.E.R. Ana Rodrigues
Hospital Professor Doutor Fernando Fonseca, E.P.E. - Pediatria Marta Cabral
Hospital de Vila Franca de Xira, E.P.E. Helena Sousa
Centro Hospitalar Universitário de Lisboa Central (CHULC), E.P.E. - Hospital Curry Cabral Helena Canhão
Centro Hospitalar Universitário do Algarve, E.P.E. - Unidade de Portimão Graça Sequeira
Hospital CUF Torres Vedras Filipe Barcelos
Hospital de Braga, E.P.E. Marcos Cerqueira
Centro Hospitalar do Tâmega e Sousa (CHTS), E.P.E. João Lagoas Gomes
Unidade Local de Saúde do Litoral Alentejano (ULSLA) Ana Valido
Hospital Distrital de Santarém, E.P.E. Filipa Farinha
Centro Hospitalar de Setúbal, E.P.E. Teresa Pedrosa
Clínica CUF Belém Raquel Martins Roque
Clínica Reumatológica Dr. Melo Gomes Melo Gomes
Clínica de Reumatologia de Lisboa Augusto Faustino
Clínica Reumatológica de Coimbra José A. P. Silva
Rorvilar António Vilar
Hospital Lusíadas Braga José Costa
Casa de Saúde da Boavista - Clínica de Reumatologia Carlos Vaz
Centro Hospitalar de S. Francisco (CHSF) Margarida Cruz
Consultórios Médicos das Caldas da Rainha, Lda. Margarida Cruz
Clínica Médica Feirense Paula Valente
Hospital da Arrábida Paula Valente
Santa Casa da Misericórdia de Montemor-o-Velho Jorge Garcia
Medicourém - Serviços Médicos e Paramédicos, Lda. Jorge Garcia
Clínica SAMS Tomar Jorge Garcia
Ucardio Jorge Garcia
Centro Clínico de Lisboa - SAMS Carlos Miranda Rosa
Hospital Particular do Algarve | Gambelas - Faro Cristina Catita
Hospital da Luz Oeiras Catarina Resende
Hospital CUF Santarém Maria João Gonçalves
Hospital da Luz Setúbal Catarina Resende
Hospital Ortopédico de Sant`Ana Filipe Araújo
Montepio Rainha D. Leonor Santiago Manica
Hospital de Loulé Graça Sequeira
S.O.S. Médicos - Taviclínica Graça Sequeira
Clínica O Meu Médico Graça Sequeira
Hospital Particular do Algarve - Alvor Graça Sequeira
Quadrantes - Clínica de Cascais Sara Cortes
Hospital CUF Cascais Filipe Araújo
Serviços Sociais da Caixa Geral de Depósitos (SSCGD) - Centro Clínico de Lisboa Manuela Micaelo
Clínica CUF Almada Ana Cristina Cordeiro
Hospital Lusíadas Albufeira Vítor Teixeira
Ribaclínica João Dias

Experts group

The Expert Group for the 2022-2024 period is composed by the following people:

  • Osteoporosis Study Group:
    • Filipe Araújo
  • Osteoarthritis Study Group:
    • Soraia Azevedo
  • Pain Study Group:
    • Daniela Faria
  • Spondyloarthritis Study Group:
    • Patrícia Pinto
  • Rheumatoid Arthritis Study Group:
    • José António Costa
  • Rheumatology and General Practicionaire Study Group:
    • Maria João Gonçalves
  • Pediatric Rheumatology Study Group:
    • Raquel Marques
  • Muskulosqueletal Imaging Study Group
    • Joaquim Polido Pereita
  • Systemic Inflammatory Rheumatic Diseases Study Group
    • Vasculitis: Cristina Ponte
    • Systemic sclerosis & myositis: Maria João Salvador
    • Systemic lupus erythematosus & Sjögren’s syndrome